The first World Scleroderma Day was inaugurated in Europe on June 29, 2009. In February 2010, the first Systemic Sclerosis World Congress was held in Florence, Italy, where it was officially decided that June 29 would be recognized as World Scleroderma Day. Within the past three years, the day has grown to include observances in Australia, Brazil, Canada, Europe, India, the U.S.
Rep. Capps, along with Rep. Peter King (R-NY), is an original sponsor of H.R. 1429, the Scleroderma Research and Awareness Act. This bipartisan legislation would work to intensify the research into scleroderma by the National Institutes of Health.
Last Thursday, Rep. Lois Capps (D-CA) read a statement in the U.S. House of Representatives to recognize Scleroderma Awareness Month. “Given the unpredictable progression of the disease, scleroderma, like many other autoimmune diseases, is difficult for medical practitioners to accurately diagnose and even more difficult to treat as there are currently no disease specific treatments,” she said. “As we recognize the need for awareness of this troublesome disease, we can and must do more for the thousands of Americans who are diagnosed with this condition each year.”
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The first World Scleroderma Day was inaugurated in Europe on June 29, 2009. In February 2010, the first Systemic Sclerosis World Congress was held in Florence, Italy, where it was officially decided that June 29 would be recognized as World Scleroderma Day. Within the past three years, the day has grown to include observances in Australia, Brazil, Canada, Europe, India, the U.S.
May we stand strongly together with all the lives across the world that scleroderma has touched, individuals and families alike.
ReplyDeleteI will always remember this day. How many suffer still with uninformed physicians-undiagnosed and misdiagnosed. Searching and Searching. May they find this blog and know the strength and it's foundation. May new scientists take up the challenge to unravel this relentless aggression.
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